Cutepoison92
Rising Star
Hi everyone,
I've been dealing with long COVID, also known as chronic fatigue syndrome (CFS), for almost 4.5 years, ever since the pandemic began. During this time, I've been mostly housebound, with several months spent bed-bound. Recently, I've become semi-functional thanks to starting a brain retraining program.
I’m convinced that the root of the issue lies in our stress response, which remains chronically activated, much like in PTSD. My most debilitating symptoms include brain fog, chronic pain, and fatigue. I’ve experienced periods of remission, and since focusing on regulating my nervous system, these periods are occurring more frequently—about every 1-3 weeks—whereas before, they only happened once or twice in an entire year.
I’m reaching out to see if anyone else with CFS has found relief or experienced significant improvement. I've seen a few stories of recovery on this site, but I’d love to hear if there are any recent updates or experiences.
Living with CFS has been one of the hardest challenges of my life. To put it in perspective, if I were to compare it to my 6 years old brain tumor surgery i had and everything that followed, that surgery felt like a walk on the beach in comparison to dealing with CFS.
Any advice or insights would be greatly appreciated!
I've been dealing with long COVID, also known as chronic fatigue syndrome (CFS), for almost 4.5 years, ever since the pandemic began. During this time, I've been mostly housebound, with several months spent bed-bound. Recently, I've become semi-functional thanks to starting a brain retraining program.
I’m convinced that the root of the issue lies in our stress response, which remains chronically activated, much like in PTSD. My most debilitating symptoms include brain fog, chronic pain, and fatigue. I’ve experienced periods of remission, and since focusing on regulating my nervous system, these periods are occurring more frequently—about every 1-3 weeks—whereas before, they only happened once or twice in an entire year.
I’m reaching out to see if anyone else with CFS has found relief or experienced significant improvement. I've seen a few stories of recovery on this site, but I’d love to hear if there are any recent updates or experiences.
Living with CFS has been one of the hardest challenges of my life. To put it in perspective, if I were to compare it to my 6 years old brain tumor surgery i had and everything that followed, that surgery felt like a walk on the beach in comparison to dealing with CFS.
Any advice or insights would be greatly appreciated!